Let us fight against deadly disease--Thalassaemia

Hi…
 

ON SUNDAY 8^th may 2011    7-15 AM TO 11 AM- Rally/Walk

MANY ACTIVITIES ARE HAPPENING FOR AWARENESS ABOUT THALASSAEMIA PREVENTION.

LET'S JOIN OUR HANDS TO FIGHT AGAINST TAHALASSAEMIA.

Venue:  Necklase Road –Eat Street

Please contact any of the below

Manoj Kumar. M    -           9948798072

Ranganath D            -           9885613697

Pavan                        -           9030001950

Suman Jain (coordinator): 9989706399

Note: you can also order T-shirts of Rs. 200/- in advance. Please confirm by tomorrow 9am

Love all-Serve all

AMMA Srinivas

పరోపకారాయ ఫలంతి వృక్షాః! పరోపకారాయ వహంతి నద్యాః! పరోపకారాయ చరంతి గావః! పరోపకారార్థ మిదం శరీరం!!

This body is to serve the needy, as how the Trees, Rivers and Cows do...

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From: Ranganath Daruri
Sent: Friday, May 06, 2011 7:31 PM

Dear All,

ON SUNDAY 8^th may 2011    7-15 AM TO 11AM  MANY ACTIVITIES ARE HAPPENING FOR AWARENESS ABOUT THALASSAEMIA PREVENTION.

LET'S JOIN OUR HANDS TO FIGHT AGAINST TAHALASSAEMIA.

What is Thalassaemia

• It  occurs because of defect in hemoglobin molecule.
• The production of hemoglobin in the molecule will be partly or completely stopped.
• Thalassaemia is an inherited disorder of the red blood cells.
• Thalassaemia Carrier: one of the two chromosomes of the cell are infected.
• Thalassaemia Major: two chromosomes are infected , basically It happends when both parents are Thalassaemia Carriers.
• This disease carries from parents to children because of the two infected chromosomes

THALASSAEMIA CARRIES AND DANGEROUS WHEN MARRIAGES BETWEEN TWO THALASSAEMIA CARRIERS.

Reduction of Thalassaemia Majors by marriage between Thalassaemia Carrier and Healthy Person

Types of Thalassaemia

There are three types of thalassemia that are of global importance:

1. Alpha (α) - thalassaemia
2. Beta   (β) - thalassaemia
3. Haemoglobin E (HbE)  thalassaemia

Epidemiology of Thalassaemia

                                        

It is estimated that there are 80-90 million carriers of Thalassaemia worldwide and 60-70000 births of affected children every year. Most of these die in early life, often without a diagnosis or because of inadequate treatment

l  People of Arab origin are over 3% carriers. In Central Asia 4-10% and in South East Asia, the Indian subcontinent and China 1-40% carriers (the very high rates in this part of the world are due to HbE).  

It is estimated that there are 35 million carries of Thalassemia i.e. 1 in 25. Around 10 – 15,000 babies with Haemoglobinopathies are born in India every year. Few of the ethnic group like Sindhis, Gujarathis, Punjabis, Jains, Marwadis, etc is high risk communities for this disease

Signs and Symptoms

The child is normal at birth but between the age of 6 weeks and 2 years

 parent or doctors can identify important signs like pale skin, restlessness, poor appetite and a mass (spleen) felt on the left side of the tummy.

Diagnosis

Patient subjected to special tests like Hb Electrophoresis (estimation of HbA2 and Hb F levels) and complete blood picture (CBP) will clinch the diagnosis. 

Cost of Treatment

           

Cost of the Treatment

	Particulars	Cost
1	Blood transfusion	Free*
2	Leucodepletion filters (per transfusion)	Rs. 1,000/-
3	Iron Chelation
a)	Desferal (Parental Chelation
	i.  Infusion pump (once in life time)	Rs. 14,040/-
	ii. Drugs (life long)	Rs. 8,000 to 10,000 / month
b)	Kelfer (Oral Chelation)
	i. Drugs (life long)	Rs. 2,000 to 3,000 / month
c)	Tab. Asunra 400mg & 100mg	Rs.2300 to 9000 per month
4	Other drugs and disposables (life long)	Rs. 500 to 1,000 / month
5	Periodic medical check-up (life long)	Rs. 2,000 / year
6	Bone marrow transplantation (permanent cure)	Rs. 10,00,000/-

Regards

Ranganath Daruri

9885613697